Linking cancer and other health data
Challenges and issues – a global view.
A Record Linkage Workshop
Date: 17th November 2008
Time: 9:00am-4:30pm
Location: Australian Bureau of Statistics
5th Floor, St Andrews House
Sydney Square
Sydney NSW 2000
This workshop is conducted in association with the Clinical Oncological Society of Australia (COSA) and International Association
of Cancer Registries Annual Scientific Meeting (18-20th November) (www.cosa-iacr.org)
For more information about the conference please contact Dr Paul Jelfs, Assistant Statistician, Social Analysis and
Reporting Branch, Australian Bureau of Statistics, paul.jelfs@abs.gov.au, 02 6252 6690.
Program
Overview of record linkage across the world |
| 1. Paradise of register-based epidemiology Dr Eero Pukkala – Finnish Cancer Registry (Finland) |
| 2. Overview of record linkage in Japan and the rest of Asia Dr Hiroaki Katayama – (Japan) |
| 3. The development of the UK’s National Cancer Data Repository Dr Eva Morris - Cancer Research UK Bobby Moore - Career Development Fellow, Cancer Epidemiology Group Northern & Yorkshire Cancer Registry & Information Service |
Checks and balances in record linkage |
| 4. Key aspects of the law, privacy, Ethics and data use as applied to Record linkage activities Professor Richard Madden – National Centre for Classification in Health |
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Linkage systems issues |
| 5. Managing a record linkage system – the technical side Dr John Bass – Curtin University, based at the Menzies Research Institute, Tasmania (Australia) |
| 6. Managing record linkage system in NSW/ACT Ms Katie Irvine – Centre for Health Record Linkage, Cancer Institute NSW (Australia) |
7. Using record linkage data - Linkage of survey, administrative data, census and medical records |
| Difficulties Concerning the Identification of Individuals for the Cancer Registry in Japan Dr Hiroaki Katayama – Japan |
| Nordic Occupational Cancer Project Dr Eero Pukkala – Finnish Cancer Registry |
| Census Data Enhancement project Dr Glenys Bishop - Australian Bureau of Statistics |
8. Outcomes from record linkage activities |
| Using linked data for assessing patterns of cancer careAssociate Professor Diane O’Connell – NSW Cancer Council |
| Managing a record linkage system – the people side Dr John Bass – Curtin University, based at the Menzies Research Institute, Tasmania (Australia) |
Key Website References
Photos from the Workshop
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